Job responsibilities
Primary ciliary dyskinesia (PCD) care is provided by a highly specialist management centre commissioned by NHS England. It is a genetic disease where the cilia do not function properly preventing the clearance of mucus from the lungs, paranasal spaces and ears. Recurring respiratory infections can lead to irreversible scarring and obstruction in the airways. The newly formed PCD team require administrative support for all aspects of their work from direct clinical care to audit and QI.
The successful candidate will be self-motivated, efficient, resourceful and able to communicate clearly and effectively. They must be able to prioritise their workload efficiently and stay calm and autonomous in a busy office environment. The post holder will work as an integral and active part of the PCD multidisciplinary team (MDT).
The post holder will have a wide range of skills including team working, patient contact, clerical work and the management of databases, and will act as an advocate for the patient and their family. They will be responsible for supporting the PCD MDT in the provision of a patient centred service.
The role will involve working with sensitive, confidential information, and the successful candidate will be expected to maintain the Trusts standards and policies at all times. The post holder will support the administration of the annual review service and provide administrative and clerical support to the PCD service as needed. They will maintain national and local PCD databases in a timely manner, and have a flexible approach and provide cover for any areas specified.